As much as we would like to turn a blind eye to the harsh realities of cancer, it’s important to acknowledge and discuss the worst aspects of this disease, which I do as part of my surveying of cancer patients and survivors for Live Life Now Project. One of the key aspects of the project asks cancer patients and survivors to share the worst thing about their cancer experience, and the responses are always wide and varied.
A common response to the question was the not knowing what’s coming next. As patients, survivors and the medical community know all too well, cancer is a disease that is notoriously unpredictable, and there are always questions and uncertainties for patients about their prognosis, the effectiveness of their treatment, and the potential for a recurrence. This sense of uncertainty can lead to anxiety and fear, which can make it difficult for them navigate this difficult journey.
Another frequent response was around the impacts of chemotherapy. While chemotherapy can be a life-saving treatment for many cancer patients, it also comes with a host of unpleasant side effects, including nausea and fatigue, amongst others. Some patients and survivors have suggested that the side effects of chemotherapy can be worse than the cancer itself.
Terminal cancer patients have also shared their fears of leaving their loved ones behind. The thought of not being there for their children, spouses, and families is a heavy burden to bear, and a number suggested that it’s important for patients to have access to emotional support and counseling to help them cope with these feelings.
Cancer can also take a toll on a patient’s mental health and self-esteem. One respondent shared that the worst thing about their cancer experience was learning that people they thought supported them the most, actually supported them the least, with regards to friends and family members within their circle. A number of Live Life Now Project participants have highlighted the fact that cancer can be a lonely and isolating experience.
The limited capacity of a patient’s body was also a familiar response. Cancer can leave patients feeling tired and weak, which can make it difficult to do the things they once enjoyed. This can be frustrating, and it’s important for patients to focus on self-care and taking things one day at a time.
The comments and suggestions mentioned above are from a very small sample of the thousands of cancer patients globally who have participated in Live Life Now Project. There’s no question that cancer can be a challenging, difficult and life-changing experience, but the stories and advice of cancer patients and survivors can offer valuable insights and support for those facing adversity. Cancer patients and survivors have much wisdom to share about life and the cancer experience, which is what Live Life Now Project is all about. The project’s participants offer a valuable perspective on the battles they have faced and have shared their views openly to guide and support.
